Dear
Family, Friends, and Prayer Warriors:
I know it’s been awhile since I last wrote with an update on
my status. No one told me how much fun life outside of the NICU could
be! Dad, Mom, and I have started to get into a routine, and have been
busy with attending doctors’ appointments, running errands, going to church,
and having visits from therapists. It is so much fun being out of the
hospital; I finally got to meet my four-legged siblings and have even learned
the beauty of sleeping-in on some days.
Thankfully, I have not needed any oxygen support to help me
breathe since I left the hospital. I am connected to one machine
twenty-four hours a day that monitors the oxygen level in my blood, and at
night I wear a second monitor to make sure I keep breathing and my heart
continues to beat okay while I rest. Dad and Mom are able to use a machine
that feeds me through a tube into my stomach since I’m not able eat through my
mouth yet. At times I have tried sucking on Mom’s finger, which seems to
excite Dad, Mom and all my family.
I have a Developmental Therapist who comes and visits me on a
weekly basis. She gives Mom and me new exercises and skills to practice.
We have many exercises to do daily that will help keep my muscles loose and my
arms and legs moving well. I really like the massages I get to help
assist with this movement. I still need help getting the fluids out of my
nose and mouth, but I have developed a stronger cough that clears my throat and
helps keep that yucky fluid out of my lungs. Praise Jesus that He is
continuing to help me learn to manage these secretions on my own.
As I said, I have been going to many doctors’
appointments. This week I get to meet a new doctor. I will be
traveling to the University of Wisconsin at Madison to see a brain
doctor. Since the events of my birth led to a significant brain injury,
my parents know this is a very important appointment for my continued
healing. They ask that you lift this appointment up in prayer in some of
the following ways:
· Pray
that we will be able to develop confidence and entrust my care to this new
doctor.
· Pray
for wisdom for the doctor as I meet her for the first time and she evaluates
me.
· Pray
that the doctor will see everything God is doing in my life and not set
limitations on what I will be able to do based on my medical diagnosis.
· Pray
that she will be honest with Dad and Mom on her medical findings from my
evaluation and test results.
· Pray
for safety as we travel to Madison, WI and that I will tolerate the trip in the
car.
I do not always do well in my car seat for extended periods of time.
I do not always do well in my car seat for extended periods of time.
· Pray
that Jesus will calm Dad and Mom’s nerves and give them wisdom on the questions
to ask this new doctor.
My
appointment is this Wednesday, November 20, 2013, at 11:30AM. If you are
available and willing, we would appreciate prayer during our appointment.
God
continues to reveal Himself in the details of my health and care. It is with
Faith in Him that we look forward with great anticipation to see how the Great
Physician will work through this time in my life. Thanks to all for the prayers
and support.
Love,
Adalynn
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